Showing posts with label Lou Gehrig's Disease. Show all posts
Showing posts with label Lou Gehrig's Disease. Show all posts

Thursday, August 21, 2014

The Ice Bucket Challenge

If you don’t know, the ice bucket challenge is this: you must make a donation to the ALS Association or one of its affiliates. You have to donate at least $10 and have a bucket of ice water dumped on you or you donate at least $100 to avoid the pain of ice cold water over your head. If you choose the ice water you should record the event, post it to some form of social media, and “call out” some of your friends for the challenge. It’s as simple as that.

I understand donations are way up.

I was tagged for the Ice Bucket Challenge by my friend and Pastor. I had planned on making a donation to the ALS Association anyway, but thought I’d wait until I was called out. 




Here is a picture of the bag of ice that I am not going to put into a bucket of water and dump over my head. If you know me at all you know that I hate being cold. Even if it seems like a refreshing idea on a hot summer day. Not going to happen.

I like Charlie Sheen’s response to being challenged. 





While I don’t have his kind of money I do congratulate him on a job well done! And I would challenge others to give proportionately based on their own circumstances.

So, while I am purposefully avoiding the icy challenge, I am not avoiding the cause. Can I challenge my friends even if you don’t see me getting soaked? I hope so.




If you enjoy my blog and would like to follow me on Facebook, I can be found at The Reluctant Survivor. And on Twitter @relucsurvivor.

Sunday, August 17, 2014

Amyotrophic Lateral Sclerosis

Amyotrophic lateral sclerosis. Do you know that that is?

Robin Williams and the Ice Bucket Challenge are the two things that have been trending on my social media this week. I thought about writing separately about these topics, but I don’t know which one to pick first. So I thought I’d write about both.

I do not have a tribute to Robin Williams. I am deeply sadden by his death. When my husband said, “Did you hear about Robin Williams? He’s dead,” on Monday night I hesitated before asking how. When he said it was an apparent suicide I paused before saying, “That’s not surprising.” I had truly been wishing that he would say “heart attack” because, let’s face it, suicide carries with it the stigma of mental illness.

As the details of Mr. Williams’s death and medical condition come to light I am struck by the reality that mental illness is nothing more than a disease of the brain. When I say “nothing more” I do not mean to trivialize the severity of such a disease. Like cancer, it is serious. Apparently Mr. Williams had recently been diagnosed with Parkinson’s disease. One of the symptoms of Parkinson’s is depression. I say symptoms because it is not just a side effect. Think about it: Parkinson’s is a disease of the brain. So is depression. Again, it’s not surprising.

I personally know two people who are being treated for Parkinson’s and depression is very real. There are medications to counteract the depression, but often the depressed person does not even realize they are depressed. It is a vicious cycle and it is important that loved ones and medical professionals recognize it. I’m not a huge fan of big pharma, but in this case, please, take the medication.

Amyotrophic lateral sclerosis is commonly referred to as ALS, and known as Lou Gehrig’s disease. The Ice Bucket Challenge is supposed to “bring awareness” to the disease. It is actually more than that. If you accept the challenge you have to make a small donation to ALS research and dump a bucket of ice water over your head (no thank you). If you refuse the ice bucket you have to donate at least $100. I first learned of this challenge several months ago when my friend Joann posted a video of herself on FaceBook. The challenge has since become the summer past time here in New England.

Apparently donations are up. And this is a good thing. My mother’s best friend died from ALS. My college roommate’s father died from it. Recently a close law school friend passed away from the disease. According to the ALS Association, amyotrophic lateral sclerosis is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. [Source: www.alsa.org]. Another disease of the brain.

So while the two seem unrelated, both touch on diseases of the brain. And I’m pretty sure Robin Williams would be the first one to dump a bucket of ice on his head while spewing some wit that would make us all laugh.


To make a donation to the ALS Association, click here: Create a world without ALS.



If you enjoy my blog and would like to follow me on Facebook, I can be found at The Reluctant Survivor. And on Twitter @relucsurvivor.